Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

Welcome to Rein in Sarcoma

Though Sarcomas are rare, you are not alone in your battle against the disease. The Karen Wyckoff Rein in Sarcoma Foundation provides news, resources, and a way to connect to others with the disease. Since our inception in 2001, Rein In Sarcoma has had the opportunity to serve many individuals who, like you, have waged a personal war against this disease.

To learn more our mission, click on our video below.

For more background information about RIS, click here.

We thank you for the privilege of assisting you on your personal sarcoma journey.

  • Our Mission
  • Karen's Story
  • Contact Us
  • Patient and Family Support Programs
  • Coping with Cancer
  • Sarcoma Survivor Stories
  • Understanding Sarcoma Cancers
  • Local and National Resources
  • Sarcoma Patient Starter Notebook
  • For newly Diagnosed Sarcoma Patients
  • Understanding Sarcoma Cancers
  • Lumps & Bumps
  • Red Flags of Sarcoma Cancer
  • Educating the public and medical profession about the warning signs of sarcoma Cancers


  • Why support to Rein in Sarcoma?
  • Ways to Give
  • Named Tribute and Memorial Funds
  • Plan your own Fundraiser to Benefit Rein in Sarcoma

Rein in Sarcoma—the Newest Sensation at the Minnesota State Fair

RIS Surevys Sarcoma Knowledghe at State FairWhat do Rein in Sarcoma (RIS), bacon maple funnel cakes, and deep fried ribs have in common? All made their debut at the Great Minnesota Get-Together this year!

RIS manned a booth for seven days at the University of Minnesota’s Driven to Discover Building to spread the word about sarcoma cancers to fairgoers. Volunteers from both RIS and the University of Minnesota used this opportunity to conduct research by administering a pop quiz about sarcoma and its early symptoms to over 1,250 Minnesota residents.

2015-16 RIS Sarcoma Scholars Announced

Sarcoma Scholars 2015-2016Rein in Sarcoma's five new Sarcoma Scholars from the Mayo and University of Minnesota Medical Schools were announced at the 2015 Party in the Park.  Introduced by Dr. Katherine Dusenbery of the University of Minnesotaa and Jean Stahl of the Mayo Clinic the five scholars are: Brendan Coutu, Susan Sun, Katherine Thiebert, Margaret “Maggie”Cupit and Justin MaurounLearn about our Sarcoma Scholars...

15th Party in the Park - An Evening to Remember

2015 PicnicRein in Sarcoma's 15th "Party in the Park" may have been our biggest and best ever. Over 1,500 people attended from at least ten states. It was an evening full of experiences that delighted and moved attendees. The evening for many began with our annual sarcoma family picnic, sponsored by D'Amico Catering, attended by over 500 sarcoma survivors, loved ones and those directly touched by sarcomas. It closed at dusk with lighted luminaries, beautiful music and fire dancing.

July Declared Sarcoma Awareness Month In Minnesota

Sunflower Party Image

Governor Mark Dayton has declared July as Sarcoma Awareness month in Minnesota. Many activities are occurring through out the month my RIS and our Partners culminating in the July 27th Party in the Park. In his declaration Gov Dayton and the Secretary of State stated:

RIS at the MN State Fair

Driven To Discover BuildingFor the first time RIS will have a real presence at the MN State Fair as a part of  the University’s Driven to Discover Building. This is a unique opportunity to both conduct research and spread the word about Sarcoma Cancers. WE NEED VOLUNTEERS TO MAKE THIS WORK.

Our Sarcoma Scholars under the direction of Dr. Dusenbery (Amber Retzlaff chief author) have written a survey with the purpose of assessing what the average Minnesotan knows about sarcoma.