Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

Welcome to Rein in Sarcoma

Though Sarcomas are rare, you are not alone in your battle against the disease. The Karen Wyckoff Rein in Sarcoma Foundation provides news, resources, and a way to connect to others with the disease. Since our inception in 2001, Rein In Sarcoma has had the opportunity to serve many individuals who, like you, have waged a personal war against this disease.

To learn more our mission, click on our video below.

For more background information about RIS, click here.

We thank you for the privilege of assisting you on your personal sarcoma journey.

  • Our Mission
  • Karen's Story
  • Contact Us
  • Patient and Family Support Programs
  • Coping with Cancer
  • Sarcoma Survivor Stories
  • Understanding Sarcoma Cancers
  • Local and National Resources
  • Sarcoma Patient Starter Notebook
  • For newly Diagnosed Sarcoma Patients
  • Understanding Sarcoma Cancers
  • Lumps & Bumps
  • Red Flags of Sarcoma Cancer
  • Educating the public and medical profession about the warning signs of sarcoma Cancers


  • Why support to Rein in Sarcoma?
  • Ways to Give
  • Named Tribute and Memorial Funds
  • Plan your own Fundraiser to Benefit Rein in Sarcoma

Learning about doctors’ knowledge of sarcoma

Michelle Kolling surveys physicanFamily Physicians take part in a RIS study of the knowledge of sarcoma among primary care Providers.

This year our sarcoma scholars are designing surveys for primary care providers and the public to assess the general knowledge base about sarcoma. This research is being carried on under the direction of Dr. Dusenbery at the University of MN and Dr. Okuno at the Mayo Clinic. As the first step in this project the Rein in Sarcoma Red Flags Team surveyed over 80 doctors at our booth at the Family Physicians Conference.

On the Road and at Home with Medical Student Education

Kevin O'Keefe tells his sarcoma storyThe tenth annual sarcoma medical school lecture sponsored by RIS expanded its reach for the first time to the University of Minnesota Medical School in Duluth on April 13th and at the U of M Twin Cities Campus on April 22. The programs were organized by Sarcoma Scholars Amber Retzlaff, Catherine Holton and Phillip Thomas. The programs were similar in format.

Planning 2015 Party in the Park is Underway!!

March 2015 Kick off MeetingAttend our Monday, June 8th "All Hands" Meeting!

Now is a good time for you to join the planning for the event! We need enthusiastic people with innovative ideas in order to produce a fresh and exciting event.  Join us for deserts and planning starting at 6:30 on June 8 11 at the Wyckoff's in Shoreview.  Shoreview. Party Chairperson Kevin O"Keefe always keeps things interesting and there are great chair people for each event committee.  All will be happy to welcome you to their committee.

KWRISF Awards $125,000 for 2015 Research & Education

The RIS Board authorized $125,000 at its January  Board meeting for 5 new sarcoma research projects through the U of M Masonic Cancer Center and three RIS Sarcoma Cancer Fellowships fot the 2015-2016 Academic year.  In addition the Board authorized 2015-2016 RIS Madulin Sarcoma Scholarship for both the University of Minnesota and the Mayo Medical Schools. These awards are the direct result of the broad and deep support that RIS received from so many of you in 2014.

A Hopeful Winter Gathering Inspires Many

Winter Gathering 2015 Scott Okuno and Denis ClohisyOver 90 sarcoma survivors and their loved ones gathered on Sunday, January 25 for an afternoon of hope and inspiration at the beautiful Bachman’s Garden Center in Minneapolis. Attendees were surrounded by bright and colorful flowers which were one of the many things that brought hope on this cold winter day.

Sarcoma doctors Scott Okuno, Professor of Oncology and Medical Oncologist at the Mayo Clinic and Dr. Denis Clohisy, Professor and Head of the Department of Orthopedic Surgery at the University of Minnesota, spoke about current sarcoma treatments, Read more...