Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

New Patient Checklist

The RIS New Patient Checklist provides suggestions for newly diagnosed sarcoma patients.

 

Research Doctors, Hospitals and Targeted Cancer Centers


Seek an opinion from a sarcoma center or doctor who has considerable experience treating sarcoma cancers. Sarcoma can be very different from other cancers in how it responds to treatment. Therefore it is wise to seek the opinion of someone who is experienced in treating this specific form of cancer. read more...

 

Find a Personal Advocate

Find a personal advocate or someone whom you trust to carry out your wishes and provide emotional support for you throughout your treatment.   This can be a friend, loved one, or co-worker. read more...

 

Research Your Particular Sarcoma Cancer

Research sarcoma cancers and the particular sarcoma you may have been diagnosed with. More then three dozen different types of sarcoma have been identified, so it is important to understand the particular sarcoma for which you have been diagnosed. read more...

 

Join the RIS Support Network

Join the Karen Wyckoff Rein in Sarcoma Foundation Support Network. The Network is designed to provide increasing resources and support for sarcoma patients, survivors and loved ones particularly in the Upper- Midwest. read more...

 

Get Local Support

Remember you are not alone in dealing with sarcoma, be sure to take advantage of any support systems in your community. Rein in Sarcoma (RIS) hosts several events throughout the year in the Twin Cities to support sarcoma patients and loved ones. read more...

 

Set up a RIS - CaringBridge Collaborative Website

 RIS is among the first nonprofits in the country to partner with CaringBridge™ to offer free, easy-to-create personal Web sites, (with links to Rein in Sarcoma and its sarcoma resources). Reach out to others for help - family, extended family, friends, and others who may want to help. read more...

 

Peer to Peer Sarcoma Network

The Peer-to-Peer Network wide consists of individuals affected by sarcoma - Survivors, Caregivers and Loved ones, from across the country, who wish to correspond with others in the sarcoma community. read more...

 

Join the Association of Cancer OnLine Resources (ACOR)

 Join the Association of Cancer Online Resources (ACOR) sarcoma list serve and open up dialogue with other sarcoma patients, survivors, and family members concerning treatment options, diagnosis, helpful advice, and emotional support. read more...

 

Consider Fertility Options

If possible, consider fertility options before treatment. A sarcoma diagnosis often requires immediate action, and treatments can affect the patient's fertility. If fertility is an important to you, bring it up with your doctor. read more...

 

Nutrition - Take care of yourself

Research cancer-fighting diets and optional minerals and supplements. Talk about these options with your doctor or dietitian. read more...

  

Read Relevant Books

 Read relevant books: medical, science, support, inspirational, religious, spiritual, complementary (mind/body), informational, and dietary. read more...

  

Tips for working with your Medcial Team

& Just who are They?

 You have and will interact with many medical providers in your sarcoma journey. Here are useful tips from others who have shared your journey. read more...