Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

Sarcoma Stories

“A place to learn, share, hope, and honor”

In Sarcoma Stories you will find firsthand accounts written by sarcoma patients and survivors. You also will find stories honoring those we have lost to sarcoma cancer as a memorial to our love for them and a tribute to their continued impact on our lives.

To meet the needs of our readers we have placed these stories into three categories. The decision whether to identify oneself as a sarcoma patient or a survivor is purely a personal one. Some view themselves as a survivor from day one of a diagnosis, while others may delay that personal term until a specified or indefinite number of years of being sarcoma cancer free. For the ease of reading these sarcoma stories we use these definitions:

Sarcoma Patients: In this section you will find stories of persons who are currently undergoing active treatment for their sarcoma, as well as those who don’t yet think of themselves as sarcoma survivors.

Sarcoma Survivors: In this section you will find stories of persons no longer undergoing active treatment and who view themselves as survivors. Here, you will find stories from those just a few months after treatment, to those who have survived sarcoma for many decades.

Tributes and Memorials: In this section you will find stories by loved ones in tribute to those who have been lost, but who are deeply loved and who continue to impact on our lives.

Contacting these individuals: If a writer is willing to be contacted, a link to their contact information is provided within their sarcoma story. This may include their CaringBridge site or a Rein In Sarcoma networking site such as the RIS Ning site and/or RIS FaceBook.

Tell us your Story: Each of us has a story to tell about our sarcoma journey. If you would like to share your story with others, we encourage you to do so. To learn more, click here.

Sarcoma Patient/Survivor Stories


Sarcoma Survivor Stories


Tribute and Memorial Stories